Waaaaaay to much information for my regular readers, I'm sure, but probably helpful to some woman somewhere (bless your heart, Dear) wondering how a common gynaecological surgery will affect the rest of her life, you know, sexually.
Here's the thing: I stumbled upon some whacktivism pre-hysterectomy that said I probably wouldn't be able to have orgasms post-surgery and that even if I could, they wouldn't be uterine orgasms so they wouldn't be very good ones. It had me greatly disturbed. Having orgasms is very very high on my list of priorities (way higher than, perhaps sadly, a tidy home, maxing out my RRSPs and/or doing something about global warming.)
When I asked my doctor if a hysterectomy would affect orgasm function he said, "There's some debate about that. The majority of women say orgasm is a function of the clitoris but there's... some debate."
The flying monkeys from the HERS foundation are busy all over the internet telling women that they know first hand how great the loss of uterine orgasms are and should a woman post anywhere that a hysterectomy did not affect her ability to have orgasms, they will respond en masse that it's because she's never had a proper orgasm, so she doesn't really know and shouldn't be trusted.
Because I figured out how to diddle myself at the tender age of 4 and have been a quite dedicated to the practice ever since, I was very worried. I'm pretty sure, you see, that having orgasms is one of my fortes. I'm entirely sure that I've been doing it right and having the good kind.
10 years ago I wouldn't have been able to tell you much about uteruses and cervixes or any other of the more elusive female organs, but throughout the course of three pregnancies and a gynecological crises I've learned ever so much about which organ does what and what it feels like when it's doing its thing. I know, for example, what a cervix dilating feels like.
Also, I experienced a very peculiar pregnancy symptom in each of my first trimesters which was that I'd have, you know, erotic dreams, and than wake up having an orgasm. It was awesome. All the pay-out and I didn't have to lift a finger! Those orgasms were obviously uterine -- they originated, I'm sure, in my uterus which felt kind of warm and spreading and is if was drinking up vitality and pulsing with sexual energy.
Late in my pregnancies I wouldn't be able to, you know, get off at all -- my uterus would get so hard and tense that I just couldn't relax enough.
The reason I'm explaining all this is simply to insist that I'm sure my orgasms included my uterus -- some of them even originated there without any clitoral stimulation whatsoever.
So. Post-hysterectomy, as soon as was medically prudent, I, you know, tested my ability to orgasm and was delighted to find that I still could, sans uterus, that it was still a rewarding thing to do, like I wasn't all, "that was a waste of two-minutes, I should have sorted through some bills instead," and I slumbered much more peacefully in that knowledge.
But. There is something to that whole uterine orgasm thing. In the year following my surgery, I have definitely had the experience of having an orgasm and then thinking, "Where's the rest of it? Where's the back end of it? Where's that final cadence and chord?" I can assure you, I did not think, "That was a waste of time, I should have been alphabetizing something," but I did think: "Where's the rest of it?"
Now. The year I recovered from my hysterectomy was also the same year I had three small children, two of them being under two years of age. This is not a time in which anybody could reasonably expect to describe their sex-life as "rollicking". And it was difficult, and it is still difficult for me to separate all the threads of the various things that were taxing my mojo: the emotional demands of a newborn and a toddler and a preschooler, the physical exhaustion of caring for wee ones, the physical absence of my uterus, the emotional absence of my uterus, the psychological malestrom that is being diagnosed with cervical cancer.
It does seem to me that the big thing wasn't physical, though, the big thing was what was going on in my head:
It was hard to make love without thinking about my doctors, my surgery, my cancer diagnosis, and what was missing from my body. Words like "scar," "scalpel", "disease," and "barren" would rise unbidden to the forefront of my mind.
Not sexy stuff.
Do you believe what they say about the brain being our biggest sex organ? I do.
Well now. If you take the HERS Foundation's word for it, and I hope you don't, what I've described is very typical of women's experiences and it's the end of the story -- a woman can't have orgasms without a uterus and if she can, they won't be very good ones.
Well now. It's not the end of the story. Here's what I did: I just kept trying without trying too hard, if that makes any sense. I tried not to judge myself harshly. I tried to forget all about my hysterectomy, at least between the sheets, and made myself think about other things. You know, sexy things.
And an odd thing has happened -- my orgasms have improved greatly in their grandiosity, flavour, scope and spectrum. They seem to have "relocated" themselves. My G-spot, which a couple of years ago I would have described as "over-rated" has, to deploy an over-used phrase, really "stepped up."
In Mary Roach's fantastic book "BONK: The Curious Coupling of Science and Sex" she writes about the "sexual physiology" of orgasms. According to her research, even paraplegics can have great orgasms. In people who can't feel their genitals, orgasms aren't located in the genitals. They're located elsewhere in a way that's hard to describe but nonetheless intensely awesome.
That's good news for women without uterus's who can definitely have orgasms. Great orgasms. The unicorns- leaping-over-rainbows-while-curtains-billow-and-waves-crash-on-the shore kind of sheet-grabbing, calf-clenching, God-praising kind.
You know this old joke?
It's true. We're complex. There's a lot of variables that contribute to a woman's ability to orgasm. The good news is, our physiology (which we can't control) has a lot less to do with it than the things we can learn to control.
So if you're reading this because you're recovering from a hysterectomy or terrified of one, please relax. Just keep trying some different combination of buttons and dials. Try not to think about it too hard. You'll figure it out. Be kind to yourself.
Above all, trust your body/mind/soul's ability to heal and don't pay a lick of attention to anyone who tells you you can't.
XOX
Betsy





Oh my god. Betsy. You are so. freaking. awesome. And appropriately named.
ReplyDeleteThis has to be the most awesome post EVER, in the history of the world.
ReplyDeleteAnd I'm glad no trolls ruined it, which is even better.
I had never even thought about orgasm after hysterectomy - probably because it was filed away under the "not happening to me right now" folder in my brain. Thanks for a very educational (and entertaining!) post.
ReplyDeleteYour description of sex post-hysterectomy matches my experience of sex post-prostatectomy. The orgasms are qualitatively different--not better or worse, but certainly different.
ReplyDeleteGod Bless You, and I am anything but religious.
ReplyDeleteThank you for sharing your personal experiences after a hysterectomy. I was becoming very afraid of the procedure after I read all the negative comments, and horror stories on other websites!
ReplyDeleteThank you. I am nine weeks post and doing the freaking out thing. I appreciate you sharing...
ReplyDeleteThank you, this was exactly what I was looking for to share with my sister who is contemplating her coming hysterectomy. Your experience syncs up with mine though you have been eloquent and I have not. ;D
ReplyDeleteCertainly not my post-hysterectomy experience! Libido is non-existent even with every mix of HRT (including testosterone) I've tried. I miss the uterine orgasms which are much more intense and "full body" than clitoral. Used to orgasm with intercourse - no more. Clitoral only happens with a lot of manual stimulation or toys (never needed or wanted toys before). Severed nerves pretty much destroyed the nipple/genitalia connection. And something else women like to keep hush-hush about - the loss of pelvic integrity does a number on a woman's sexy figure.
ReplyDeleteRe: prostatectomy - some men don't have the same experience as davidfcooper. I recall a guy who posted on a forum that his sexual function was only 1% of what it had been. His surgeon had told him his sexual function wouldn't be affected!
I know women who acted like their sex life wasn't negatively impacted by hysterectomy only to confide in me later that it killed their sex life.
To say that you can overcome castration by thinking your way out of it, or using your brain is ludicrous. As an example, when a pet is neutered or spayed (sterilized like a human) their behavior significantly changes even though they do not understand they've been castrated. When a dog or cat is intact, they seek to mate and all the behaviors that come with it, roaming, spraying and aggressiveness, etc. After they are castrated, they very rarely try to have sex with another animal, if at all. There are some circumstances where a dog will hump another dog in a playful behavior, but they do not attempt to have sex. If what you say has any truth to it--that the brain is the biggest sex organ, then why don't animals, who don't even know they are sterilized, continue to try to mate? When animals are castrated, they stop roaming, it decreases their desire for marking, and it makes them less aggressive. Their behavior completely changes because they are not motivated by sexual desires. I hope that people who read your blog don't really believe the ridiculousness that you can have better orgasms after you've been castrated. It's scary that someone might think they will be the same after they are castrated and agree to have elective surgery. Any reasonable person given any legitimate facts would wonder just who you are trying to convince.
ReplyDeleteSigh.
ReplyDeleteOf course human sexuality is more complex than that of cats and dogs. You realize that cats and dogs only mate when they are in heat, right? But human sexuality doesn't work that way. Not even close. Of course that is because of our brains. And our culture. And our complex identities as sexual beings. And lots of other things I won't bore you with.
I don't get why the HERS foundation so persistently ignores the difference between a hysterectomy (the removal of the uterus) and an oophorectomy (the removal of the female gonads). You don't seem to recognize that those are different surgeries. But they are. So I, being pre-menopausal but without a uterus, still ovulate. So I do go into estrus. Just like a cat might if there was such thing as a cat who had a hysterectomy.
Kitties don't get hysterectomies, they get spayed. It is a different surgery. Kitties don't have pap smears and feline gynecologists who devote their lives to preventing their early demise due to gynecological conditions such as cervical cancer.
And my surgery was not elective by any stretch of the imagination. Lots of hysterectomies are not.
And I didn't say orgasms are better. I said they were not as good, and then they were.
And I didn't say I used my brain to think my way out of it.
Why are you so desperate to deny that I can be a happy, sexual, woman without a uterus? Why are you so desperate to send a message of hopelessness and despair?
I am quite frankly, thrilled to be alive though your organization would clearly like to shut me up so I don't boggle your whacko "statistics."
Stop marking your territory all over my blog. Bad kitty.
Bascially everyone is different. No one person can speak for another, we can merely give our independent personal opinions. I don't care if it's some organization or an individual. Everybody experiences different things when it comes to the removal of the uterus. Those who sex lives suck after having the uterus removed cannot be upset, livid or mad because those of us who have a very functional and enjoyable sex life after the removal of the uterus say that there is hope and be called a liar. Some have it and some don't. It is what it is.
ReplyDeleteBETSY! For God's sake! who are you trying to convince about something that is obvious..? If just Yourself ?- then it's Okey. If you are truly happy with your sex life, orgasms.., why did you go to all this (hopefully useless trouble) here, Save your time & effort...& use it in bed with your man, if you can. After hysterectomy I have never even thought once about having sex, not speaking of an action. My libido disappeared entirely. I regret very much that I have tried once (not for myself, of course, as it is NOT in either my BRAIN or WOMB, or else... anymore) but for my husband: it was a nightmerish expierence for me (not much better for my husband), it was only PHYSICAL & MENTAL PAIN, to be avoided for as long as I "live" ever after. You know.., what? I will tell you something more, though You do not deserve it..: being castrated is much WORSE than...being DEAD. And, unfortunately, I am NOT the only castrated woman with this opinion
ReplyDeleteI suppose, the woman above...must be really suffering a lot, so let's be forgiving. From my expierence, some kind of sexual loss after hysterectomy IS a fact. Some women are expierencing total loss of libido and sexual desires, some other ...are more fortunate. There is a huge number of hysterectomized women with sexual loss. Noone can predict better -if hysterectomy will ruin a woman's life, than a woman herself. If she already thinks and feels before the surgery that hysterectomy is damaging to her sense of femininity, womanhood, if she has doubts and fear of such loss, it is almost certain that after surgery, she will be feeling in the same way, or worse. I do not advise these women to go on with this procedure too easily because it may cause them too much trouble afterwards. It is very likely to ruin their mental health entirely. The operation is irreversible and generally damaging. In extreme cases, a woman may end up with suicidal depression. Every woman who is expected to undergo hysterectomy, should be provided with decent consultation with a psychologist before she has her uterus cut out, and, possibly her sexuality, ability to have orgasms -lost. Sexuality is a very complex and delicate matter. It's the most important part of every human being, there can be no "gambling" with it. What's good for one woman, may be fatal for another. Don't let others tell you what's good or better for you. Listen to your own self, intuition. Go after your own individual priorities. Don't let any doctor or another woman convince you that... "your sex life, health..will be better after hysterectomy as it is in her case"- when you - in your own self - feel and think otherwise.
ReplyDeleteArticle in: "The Independent Health News",GB
ReplyDeleteNeedless hysterectomies are leaving patients SUICIDAL, By Sarah Schaefer:
Surgeons are doing UNNECESSARY hysterectomies, leaving some women feeling SUICIDAL and with a LOSS of libido, Labour backbenchers WARNED yesterday. Diana Organ, the MP for Forest of Dean, called for greater use of alternative therapies and FEWER hysterectomies,with MORE information for women undergoing the operation. One woman in five has a hysterectomy by age 65 and more were done per head of population in Britain than in France or America. Opening the debate in Westminster Hall,Mrs Organ highlighted the case of a young woman left incontinent by a cross infection after hysterectomy. Mrs Organ has formed a group of 57 local women who had experienced problems after hysterectomies. Lawyers were now taking some of these cases before the General Medical Council. Complaints ranged from LACK of information given before the operation, to a LOSS of LIBIDO or complications arising from further surgery necessary because of hysterectomy. Experts had found that the effects of hysterectomy could be DEVASTATING.
Some women are actually driven either to SUICIDE or have suicidal DEPRESSION as the result of the after-effects of this surgery. Hysterectomies often involved the removal of healthy organs, yet women were NOT told that beforehand./ Yvette Cooper, a Health minister said, hysterectomies were once offered as the universal cure for heavy or painful periods.But rates had fallen in England from 72,000 in 1993 to 56,000 in 1995.
The most common reason for having hysterectomy was severe bleeding with abdominal pain, sometimes caused by fibroids in the wall of the womb, although often the cause was not known.
Other reasons included prolapse of the womb, cancer or emergency treatment because of catastrophic bleeding during childbirth.
The Royal College of Obstetricians and Gynaecologists has issued GUIDANCE on the subject, warning surgeons of the NEED to REDUCE the number of UNNECESSARY hysterectomies and advising them that a woman's ovaries should not be removed without her express consent. "This ultimately will mean we should be able to spare many women the misery that they are currently experiencing".
Betsy wrote,(quote):"I don't get why the HERS foundation so persistently ignores the difference between a hysterectomy (the removal of the uterus) and an oophorectomy (the removal of the female gonads). You don't seem to recognize that those are different surgeries. But they are. So I, being pre-menopausal but without a uterus, still ovulate. So I do go into estrus(...)."
ReplyDeleteI think,HERS does not so much "ignore" the difference between hysterectomy & oophorectomy but knows the women's reports: there is a large number of women after hysterectomy (with ONLY uterus removed and ovaries left),who lost teir libido, sexuality anyway. They are unable to feel "estrus", desire, arousal,joy of sex, any longer, despite having ovaries left. Quite often, women with ovaries and without uterus lose libido entirely or to some extent. I have my ovaries but without uterus and menstrual bleedings,I do not feel any sexuality at all. I do not have it in my brain and I do not feel any physical sensation "down there", in my womb and my sex organs left (no "butterflies", no "itching", all is dead). Before hysterectomy, I could feel estrus and sexual desire during those few "special" days in the cycle, between my menstrual bleedings. My breasts also became "numb" and unsensitive, & I remember how they were sensitive and "aroused" during those few days, when I still had all my sex organs together and menstruation. It proves the fact that the function of uterus & menstrual bleeding in sexual response and pleasure is of MAJOR importance.
The intercourse is painful (vaginal dryness and atrophy), blood ligaments are severed, so the capability of sexual arousal is considerably diminished.
Betsy,you are asking: "Why are you so desperate to deny that I can be a happy, sexual, woman without a uterus? Why are you so desperate to send a message of hopelessness and despair?.."
ReplyDeleteI do not deny...because nobody can deny other person's feelings or expierences. But please, YOU - do not deny other people's feelings.
I understand, You are giving HOPE...in a seemingly hopeless situation. You have a powerful mind, imagination. You are a Poet, Mother..., but think about the women who have been driven to madness, suicide, complete non-existence, unbearable pain, and so many tragedies they are going thru after this surgery....
I am just another woman patient who has been going thru the nightmare of hysterectomy and I have been simply dying...,so many different health problems have appeared. My life, my health problems from the time before my surgery seem to have been my "paradise lost" today.
I like what HERS is doing, they do more good than evil, they happen to be a "life saviour" for many women, esp. having a fibroid problem.
Behind the HERS "whacko statistics", as You call it, are standing REAL HUMAN BEINGS, with deterioration of health...and they had had only uterine fibroids, or endometriosis, curable otherwise. The nature and spectrum of their suffering is sometimes incomparable with any other, even the strongest physical pain. What's most tragic about it, is its endlessness...and irrevocability. If I had some kind of euthanasia option now, I would consider it.
Betsy, I think Your story does not belong to the HERS' "whacko statistics". There are also cases of women, like me, who might have lived if they had read their "statistics"...on time.
Betsy, you are right at one point. For any woman who is going to have a hysterectomy, studying the HERS facts and reading their statistics is in no way helpful and it is not advisable. But HERS is a decent resource of knowledge and instructions for many women, gyns' patients, how to avoid a hysterectomy having fibroids or other not life threatening gynecological problems, how to evaluate your doctor's credentials, attitude, skills, or what questions you should ask your doctor before you let him decide about your life and treatment.
ReplyDeleteAlso, knowing all possible side effects, a woman is able to evaluate how much she can gain with the surgery, and how much she can lose. Sometimes, there is much more to lose than gain. In order to make a good decision, the HERS's knowledge is valuable for many women. So many women have uterine fibroids. It's high time the doctors stopped using hysterectomy for this benign "illness".
There are new methods available, like ExAblate, embolisation
I find it interesting that doctors may tell you that "sex is better after a hysterectomy" (I ran from THAT doctor) and yet if you read medical text books as I am at the moment because I am studying anatomy, that it's all there in black and white how a woman's body reacts during an orgasm. And yes the uterus does contract because it is trying to draw the sperm up to the fallopian tubes. So I seriously don't get how it can't affect you sex life.
ReplyDeleteI also find it interesting that my GP could openly say a hysterectomy will affect a woman's sex life because all the nerves have been cut but a gynecologist will say it's better or the same. Now why do you think that is? I think I trust my GP more who has no conflict of interest.
And another thing, I always find it so patronizing when if a woman has a sexual problem after hysterectomy that it's dismissed as a mental issue. I have two toddlers a year apart and older child and I am studying.I still can have uterine orgasms easily no matter how tired or distracted I am, because as one woman described it my "wires haven't been cut".
Riding a unicorn? Yes, but unicorns are NOT real.
ReplyDeleteI don't have my uterus. Can I still have some kind of sex life...because it is imprinted in my "head"? I'm afraid, NO!
My hysterectomized brain is very much in conflict with the rest of my new body and partial sex organs.
In fact, my brain does still remember the sexual feeling and desires I used to have had. It has been trying to recall such expierences from the past when I am dreaming at night, once or twice. But even then, my sexual feeling has been so diminished that no true satisfaction could be attained (very unpleasent sensation of unfullfilment, on the verge of "madness" after waking up).
If it is not in a night-dreaming, nothing can happen to me what you may call "sexual, sensual". There are physical mechanical obstacles and changes... that make all "the sexual stuff" impossible, forget an orgasm.
I feel, my "head" has been sentenced to the unspoken tortures. The natural sex imprint, the memories of it... my brain contains, can not be transformed into any sexual expierence in real life, in my new body.
So, I can not believe in what Betsy has described as a "real magic": "relocating", mentally and technically her sexual feeling and orgasm. The brain (MY brain, for sure), no matter how imaginative, is not sufficient enough to make love and have it all.
I feel very uncomfortable...being touched by a masculine hand. I must change the TV channel when it comes to, God forbidden, an erotic scene. Sex is painful, literally and this is my association with it, purely traumatic.
I am artistic, too, but I am unable to "out- cheat" my brain and make it... "forget" that I am uterus-less, dry, un-bleeding and so much damaged in my basic female structure, and soul.
WOW! Lots of different feedback. I am dealing w/large (8cm) fibroids and need to decide between hysterectomy or other options, but am concerned, as many women, w/my sex life being affected.
ReplyDeleteI do believe, however, regardless of the procedure I select (lucky I have a choice) that my sex life will remain strong and wonderful! I am leaning toward a UAEmbolization, even though it only shrinks the fibroids...
Best wishes to you all! Make it happen-whatever you want and need.
Truly enjoyed reading your blog, Betsy BHonest!
Thank you so much for sharing. I just happened upon this post - and I'm glad I did. It's really helpful to have an honest personal account.
ReplyDeleteLadies everyone is different. I had a hysterectomy 7 months ago and still manage to hhave mind blowing orgasms. My coworker however doesn't anymore. Betsy is right in that it is a lot to do with how you look at it. Negatively or positively. Imagine the poor young women out there that had no choice because of cervival cancer. How can they have any hope when they read posts on the internet saying their lives will be over after hysterectomy? Dealing with cancer is hard enough but now you will never have another orgasm. Really? Come on.
ReplyDeleteYes, everyone IS different, indeed,...but, COME ON, not to such a big extent. Technically the surgery causes the same bodily changes to all female bodies, and female bodies are basically the same.
DeleteMore than fewer women DO report sexual disability, sexual loss, to a smaller or greater extent after hysterectomy, and no explanation is needed, why. After all, the doctors have removed their sex organs, not an appendix, tonsils, or else...
Women before the operation are desperately looking for the confirmation that they WILL have their sex and orgasm in the same way as they did before the surgery.
I think, nobody can or should assure them that it will be exactly so. It wouldn't be honest. What's the use of giving them any false "hope", when, in fact, there is no such assurance? but the contrary, there IS a reasonable chance that they may NOT enjoy sex anymore.
They must try for themselves, as separate individuals, and the answer will be there, especially that the sexual reaction after hysterectomy has proved to be so much "an individual matter" ? Right or wrong?
What they should be told, instead, is as simple as that:
WHO KNOWS...? it depends.... Some women collapse, some don't. But with cancer you have no choice... Either you may die..., or you may live - IF you undergo hysterectomy, but just as well you may live with no sexual pleasure, or live with smaller ...or the same sexual pleasure, which IS a miracle, indeed, but, as most miracles, they DO...happen sometimes.
Yes, it is most tragic, to have cancer...and on top of that, to know that saving your life will cost you your sex life being taken away from you. The first thought that automatically comes to mind then is, "what's the use of fighting for life ...potentially without love and sex?"
It sounds like a "Sophie's choice" situation, indeed.
There are also thousands of "fibroidal" girls who lost sexuality (and decent health), due to unconsented, needless surgeries. And they can not be turned off and silenced for life. They are also courageously fighting to survive each next day, in pain, depression, abandoned by their husbands, trying to stay away from the madhouse, with no other choice but trynig to "live with it".
It IS a cruel torture, indeed, to deprive one of one's sexuality...without one's conscious consent, and to sentence one to live with this torture.
Such women deserve the right, and have the obligation, to speak about it in public and warn others. They are also, like women with cancer, in a "Sophie's choice" situation.
the best all
ReplyDeleteSome of us may still have some orgasm, some will not. So, if you do not have to remove your sex organs, don't do it.
ReplyDeleteWOW....some heated discussion. I had a total hysterectomy with removal of ovaries and tubes after being diagnosed with Breast Cancer and BRCA 2 positive. I was SCARED to death at the possibility of Ovarian cancer (I had just heard a friend of mine had been diagnosed of Ovarian Cancer the week I received my BRCA gene test back..Her gynocologist had been telling her she needed to have her ovaries removed for 2 years. Her sister has died of ovarian cancer around the same age).
ReplyDeleteI went to consult with a Gyn Onc about the prophylactic removal of my ovaries and tubes due to the increase risk of Hereditary Cancer (keep in mind, I was not afraid of ovarian cancer prior to my breast cancer and genetic testing, so this fear was doctor induced). She told me "It is now recommended to have a total hysterectomy because of the residual fallopian tube tissue attached to the uterus, could develop into ovarian cancer." I questioned her recommendation. I was 53 at the time, so the thought of giving up my ovaries and tubes was open for discussion since I was scared to death of ovarian cancer. However, I wasn't sure about the hysterectomy but decided to trust this "Medical Co-Director of Hereditary Breast and Ovarian Cancer" doctor's recommendationn. WRONG.........I later found out (went to a conference on HBOC) that the risk of residual fallopian tube tissue 'sprouting' an ovarian cancer has never happened in the 15 years since they have been tracking the BRCA gene data. Also, according to the American College of Oncologic Gynecology, Hysterectomy offers no additional risk reduction for BRCA mutation carriers. So, I confronted my 'expert' gyn-onc about the removal of my uterus and she hung her head and said "I wish I had not taken your uterus".......WTF!!!!!
The unfortunate thing is I had told my sister, who was 67 and also tested BRCA 2+, about the residual fallopian tube tissue risk (thinking I was helping her) so she consented...She has lost nipple sensation and 50-75% of her sexual response...She had just met a new man and was having 'great sex'(her husband had died several years ago) But now THANKS to the 'useless uterine attitude' of doctors, a sexually healthy woman has been rendered, to a certain degree, sexually dysfunctional....SHAME on the healtcare profession.....YES, SHAME on them..And oh, by the way, she has never read about the HERS foundation....and she has no reason to lie to me......She was injured unnecessarily.....
Regarding sex for me, I can achieve a decent orgasm with toys....However, penetrating sex is uncomfortable and it saddens me. I gained nothing from the loss of my uterus and cervix...Doctors are cruel and for some reason the AMA allows them to get by with their unnecessary sexual mutilation.
If it is not bad enough to be dealt a bum gene, you now have to navigate through the healthcare vultures who are more than willing to take advantage of your fear and go in for the kill...
I think we need more HERS foundations. No woman should ever have any sex organ removed, only to find out that 'oops, wish I hadn't taken that out'. That is criminal...I am sure there was financial incentive.....Keep in mind those DaVinci machinces cost 1+ million dollars....and I am sure Hysterectomy is the bread and butter of the Gyn Surgical budget...
Hi Betsy,
ReplyDeleteI ve really enjoyed your blog.I watched a video of the HERSfoundation on what happens during an hysterectomy and the "life altering affects"...its just been over a year and I had one sexual encounter at 8 weeks post hyster and although my brain was gung ho about it and i loved the touching kissing but the intercourse i wasnt prepared for,the pain,i bled and soreness afterward.Now that was only one time.I read somewhere a doctor suggested to masturbate to keep the fires burning, as I am one and always was a woman that was sexually alive and sensual I was sadly disappointed to depression. After reading what you have said, I decided well when ever I get in a relationship again.There will have to be some extra effort placed on him and myself,you know being dry i would need something for that..but back to the issue ,I am worried about something that may never happen,I could get with a guy and its wonderful..for this worry i have been pushing away a man thats been trying to romance his way back into my life,he left me pregnant and just these past few months has come back begging for forgiveness and a second chance,i had closed the door..thinking what profit would i be to him or any other if i couldnt perform of give him pleasure? So I think future surfing over something yet to come is futile and energy draingin of my mind..to me your blog is an eye opened and that not all women have the same experience..thank you for sharing..btw your so funny with this topic..keeps ya entertained while being informed as well.
It is amazing how there is so much heated discussion about a surgery that is so "no big deal"......It is a damaging surgery and should not be taken litely. Do not have the surgery unless there is a "known" cancer.
ReplyDeleteThank you so much for this post. I have a hysterectomy scheduled just 3 weeks from now. I'm only 35 years old. I have a 5 year old, 3 year old, and a 2 year old. I have Adenomyosis, most likely as a result from my 3 back to back c-sections. The anonymous that said back in January that saidta hysterectomy should only be performed in the case of cancer clearly isn't informed about Adenomyosis, Endometriosis, or large reoccurring fibroids. There are noncancerous uterine conditions that are miserable that have no other solution besides removing the uterus. I have extremely heavy bleeding and cramping. I cramp every day, period or not. My periods can last up to 15 days and are usually only 25 days apart. I'm not looking forward to a hysterectomy at such a young age. I am worried about sexual dysfunction, but I agree with my doctor that at this point I have no choice. I'm a mom and I need to be healthy and thriving for my kids and my husband and my uterus is causing me to have way too many days curled up on the couch. Your post helped ease my mind. Thank you.
ReplyDeleteI had a total hysterectomy (uterus, both ovaries, fallopian tubes, cervix) at age 36. Initially, sex was very painful because it took a LONG time for the back of my vagina to heal. And then I lost my sex drive completely. So I begged my doc for replacement testosterone and bam! I was wanting sex again. My orgasms pre-surgery were like orgasms men have - a build up, a huge crescendo and then a long recovery period. My orgasms post-surgery are ABSOLUTELY the same. Yes, I realize that isn't the case for some other women. But for me, not having my uterus or cervix has made no difference. I am now 50 year old and having the BEST sex of my life (yes, still with same husband). According to all the research I've read (and I am a former scientist), all female orgasms reside ultimately in the clitoris. And new research shows the clitoris is actually far larger than the part we see, and sections of the clitoris surround the vagina (giving rise to what some women refer to as "vaginal" orgasms). Does the uterus play a role in orgasm? Perhaps for some women it does. But clearly not for all women.
ReplyDeleteIt's rare for me to comment on a blog, but the discussion here has been so vibrant and varied that I'm moved. I'm scheduled for a hysterectomy in one week from today and have done, and been doing, what I can to be well informed and proactive about my choices, my healing and my future. Following almost a year of heavy, unpredictable and very painful periods, I have had continuous bleeding since the 6th December last year - that's 11 weeks in a row (well, tomorrow it will be 11 weeks) - a lot of it was pretty-well hemorrhaging - and it has only just been kept at bay (from flooding me every moment of every day) by a high dose synthetic progesterone (which is completely feral and life destroying in the side effects). Even with this, I'm still bleeding. I ran out of my medication and missed 3 doses and started heavy bleeding again within less than 24 hours of my last dose of medication. Needless to say I've been anemic as well, with associated impacts. A hysteroscopy showed precancerous cells, and an extremely mucky uterus (won't go into all the gory details) with lots of necrotic (dead) tissue. I have been off work all this time, unable to function in a day to day responsible world. I've just turned 49, I have 2 teenage sons and a beautiful partner with whom I enjoy a wonderful, energetic and enlivening sex life - orgasms for me are whole body, opening, and clearly have a lot of uterine activity happening. Like many others, I'm really concerned about the impact of the hysterectomy on this part of my life - particularly because I've had to work very hard on healing that part of my life after being raped by my father from age 3 to age 11. It took a lot of my adult life to feel ok about sexual pleasure, and now that I've found that place, the idea of potentially losing it is a pretty dark consideration. And.....my partner is ready to walk alongside me and see where we go, to find a healthy and alive place in our lives and in our sexuality....I know that I am strong and have survived a lot, and that I can find joy in life.... it is wonderful to hear other women tell their stories, whatever they may be. I am not idealising the future, I know that this is major surgery and I also know that there will be strong physical impacts from the surgery - at the time and later. At the same time, it is what I need to do, and I will find my way through whatever comes up as a result. Wishing everyone as much positive energy, sexual pleasure and joy as you can find in amongst this journey, whatever stage you're at.
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